Wednesday, September 12, 2012

Tomorrow

I'm back off to the Alfred for Transplant Clinic tomorrow.

Things have remained fairly stable over the last twelve months until now. I've noticed a slight deterioration over the last couple of months, and the Physiotherapists at Pulmonary Rehab have noticed it too.

At rest, everything seems to be the same, but as soon as I do anything - even something as small as standing up, my oxygen sats start to drop faster than normal, and my heart rate starts to increase faster than normal.

After the walk section of pulmonary rehab, my sats are now around 72%, and my heart rate is around 130.

I've noticed the difference around the house too. I have to keep stopping and sitting down when I'm doing stuff, and I have to turn the oxygen up to have a shower comfortably.

I'm not quite sure what to think about it all yet. Sometimes it's better not to!

10 comments:

Fiona said...

Tough not to think about it when it affects everything you do!!

I know how uncomfortable it is doing anything when my asthma is bad, but I know that will improve if I actually use my inhaler as prescribed (for a change). Can't imagine how it feels not to have the certainty that things will improve.

Fingers crossed that call comes soon, Cam

Naturally Carol said...

I hope they can fix you up! All the best Cam xox

bec said...

Sending you a huge hug, tough chick (not too hard to make you breathless though!). I'm here if you need anything done (part-nurse, part-crafty pal).

willywagtail said...

Sorry to hear. Here's hoping they can think of something for you. Cherrie

teddybearswednesday said...

sending you big love and thoughts Cam xo

Leonie said...

Crap. I hope that tomorrow brings some answers and a solution.

Cat from Raspberry Rainbow said...

Poo. That is not good, Cam. I'll be thinking of you tomorrow. Cat xox

Michelle said...

I'm thinking of you, my big-hearted buddy. xxx

Anna said...

I've just read this. How did you go?

Carly Findlay said...

You are amazing. So very strong.