I'm back off to the Alfred for Transplant Clinic tomorrow.
Things have remained fairly stable over the last twelve months until now. I've noticed a slight deterioration over the last couple of months, and the Physiotherapists at Pulmonary Rehab have noticed it too.
At rest, everything seems to be the same, but as soon as I do anything - even something as small as standing up, my oxygen sats start to drop faster than normal, and my heart rate starts to increase faster than normal.
After the walk section of pulmonary rehab, my sats are now around 72%, and my heart rate is around 130.
I've noticed the difference around the house too. I have to keep stopping and sitting down when I'm doing stuff, and I have to turn the oxygen up to have a shower comfortably.
I'm not quite sure what to think about it all yet. Sometimes it's better not to!
10 comments:
Tough not to think about it when it affects everything you do!!
I know how uncomfortable it is doing anything when my asthma is bad, but I know that will improve if I actually use my inhaler as prescribed (for a change). Can't imagine how it feels not to have the certainty that things will improve.
Fingers crossed that call comes soon, Cam
I hope they can fix you up! All the best Cam xox
Sending you a huge hug, tough chick (not too hard to make you breathless though!). I'm here if you need anything done (part-nurse, part-crafty pal).
Sorry to hear. Here's hoping they can think of something for you. Cherrie
sending you big love and thoughts Cam xo
Crap. I hope that tomorrow brings some answers and a solution.
Poo. That is not good, Cam. I'll be thinking of you tomorrow. Cat xox
I'm thinking of you, my big-hearted buddy. xxx
I've just read this. How did you go?
You are amazing. So very strong.
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