Friday, November 23, 2012

On staying busy

I was chatting to Carly today and something she said stuck in my head. How do I manage to give myself enough rest to stay well and keep going? It's a hard question to answer. I thrive on being busy, and when things are tough medically, staying busy is the best medicine.

I must admit that this past week has been one of the strangest ever, so I thought I'd do a little run down of activities...
  • Friday - Called into hospital for transplant that didn't go ahead.
  • Saturday - the B-Fabulous Wedding/Pop-Up Shop at Olive Grove
  • Sunday - day off
  • Monday - Visit from Bec, Sewing, Tissue typing bloods, Prescriptions, Post Office
  • Tuesday - Sewing, School pick up, Dentist, Post Office
  • Wednesday - Intragam infusion, Olive Grove to pack up, Gleaners Inc to drop off stock
  • Thursday - Echocardiogram, Open Drawer to drop off stock, Lunch with Cathy, Tx Clinic
  • Friday - Fedex pick up, Pulmonary Rehab, lunch with Carly, Post Office.
I've also volunteered to help out with the social media and newsletter for the HLTTV, I have an article due for DiVine, and I've just accepted some contract administration work for next week.

But for now, I have new fabric to play with!

Friday, November 16, 2012

Another day another false alarm

Today started off like any other day.

I had big plans to actually get out of bed on time, head to Pulmonary Rehab and then go and meet Carly for lunch.

The alarm went off at 8AM and I remember hitting snooze at least three times.

At 8.41AM my mobile phone rang, and it was a mobile number calling me. I assumed it was the cabinetmaker as I'm finally getting my disability kitchen mods after two years of waiting.
It was actually one of the Transplant Co-Ordinators.

They had some donor lungs that were a match and they couldn't say whether I would get a transplant today, but it was a possibility and I should prepare and they'd call me back. Luckily I was still asleep and hadn't had breakfast at that stage, although I was allowed to drink half a cup of coffee.

So I went through the drill - nebs, shower, disinfect, clean clothes, and wait for another call.

At 10.08AM they called back and were still unsure whether it would go ahead but needed me to come into hospital just in case.

We went through the first bits of prep / paperwork / bloods etc and were just about to do an ECG, when at about 12.50PM I was told that it wasn't going ahead today.

There was another lady who was also a perfect match for the donor who is in dire need of a transplant right now to save her life. I hope she pulls through, and I hope the third time will be the one for me.

Monday, November 5, 2012

Photo Essay

After trepidation, desperation and complication, finally hope, and home

I saw and read this article in the newspaper last week, but I've only just taken the time to play the video and watch the photo essay. It's quite amazing.