Friday, August 31, 2012

One Year Waiting

It's one year ago today that I officially joined the waiting list.

Not much to say about it, but needed to mark time.

Friday, August 24, 2012

A Week Of...

It's funny how things just become normalised when you have a chronic illness. You don't make a big fuss about any of it because doing the same thing day after day after day after day is just the routine.
There's no point whining and no point complaining because nothing is going to change.

But then thismorning there was a reason to step back and have a real look...

Selina has been playing along with A Week Of CF on instagram, and it's been really interesting to see from afar some of the things that she has to do every day. Things that are just routine to her, as my things are routine to me.

Todays subject matter was medications. I know I've spent a small fortune at the chemist over the last 23 years, but the challenge was to look at a weeks worth of meds.

So this is my week:

  • 21 nebules of ventolin
  • 21 nebules of atrovent
  • 10.5 vials of acetylcysteine
  • a plate full of pills
I was a bit freaked out when I looked at all those tablets on a plate, but what's even more freaky is that it also means that I spend about 21 hours on the nebuliser (which is thankfully right next to the computer). That's half a full time job each week. No wonder I never have enough time to do everything!