That's a very good question. I'd been thinking about starting a medical blog for a little while, and then someone very wise told me that 'if just one thing that we put on the internet can help someone else, then it was worth it'.
When you have one (or many) rare and unusual medical conditions, it's difficult to find information and resources. I hope that maybe through sharing some of my stories, it may just help someone else.
Chronic Granulomatous Lung Disease
Panhypogammaglobulinemia also known as CVID
Secondary Pulmonary Hypertension