Gosh just realised that I hadn't been back to update this poor little forgotten blog!
Well, I've been on the transplant waiting list for a whole nine days now. I'm slowly sorting things out and ticking things off the'to do' list.
The first thing that I had to sort out was the problem with my intragam infusions interfering with my blood results.
Every four weeks, I have to have a cytotoxic antibody screening test. In very simple terms, this is to do with matching donor and recipient organs to prevent organ rejection after a transplant. I've had to change the intragam routine to four weekly so that I can go to pathology just prior to have the CYT blood test and then head upstairs to have my infusion. They'll monitor my IgG levels, and if they drop too much from the time extension, they'll look at increasing the dose that I receive.
I also managed to go to the furniture shop and order some new single beds for the spare room. I can't really make my mum sleep in a bunk bed for 3 months!
The third thing I did this week was buy myself a huge bottle of phisohex from the chemist. When I get the call, I have to have a shower and completely cover myself with the stuff to make sure I'm nice and disinfected before I get to the hospital (oh, the joy)!
So thats it for the moment... no more news on this front, although I did make a little joke on twitter yesterday.
My sister (who'll be my official carer) is in hospital at the moment, and my mum (who'll be my live-in babysitter afterwards) is scheduled for surgery this coming Friday.
What are the chances that the transplant co-ordinator will call?